Secret Life of Us

What is the simplest task you do in your day-to-day life? Getting on the bus to school or work? Going to the local shops? Visiting the park?

For the majority of families caring for a child or young person with a disability, these run-of-the-mill activities could be the most challenging tasks they face in their daily lives. It can take weeks to plan, need specialist equipment and transportation, and require additional support.

This is made harder because the right support is simply not in place.

The Secret Life of Us campaign – which has been developed in close partnership with parents – brings to life the realities of the challenges disabled children, young people and their families face in living a life many of us take for granted. It reveals the parts of their lives that most people simply do not see.

This is Toby’s Secret Life of Us, find more stories below. 

The Disabled Children’s Partnership wants to open the eyes of the public and improve the understanding of the challenges faced by families on a day-to-day basis.

We want to remove the barriers to people being able to relate to the lives of disabled children, creating greater understanding, affinity and empathy for them and their families.

We need to do this because right now, 43% of people say they don’t know anyone with a disability, despite 1 in 5 people being disabled, and 97% of parents with a disabled child say the public do not understand the challenges they face every day.

Sign up to help us change this. 

You can also follow us on Facebook and Twitter, and share the campaign with your friends and family.

We want to hear your stories. To tell your own Secret Life of Us, get in touch at: 

November 27, 2017

Katie, 7, has autism, which can affect how she plays. Over time, her family has learnt the rules of her game.
Eva writes to Katie about the puzzle of finding the right toys.

November 20, 2017

It breaks my heart that there isn’t a legal requirement to provide accessible toilets. It feels as though society doesn’t care enough for my son’s health and dignity.

October 25, 2017

Rachel’s little boy didn’t breathe on delivery and was diagnosed ten weeks later with severe brain damage. From then, she and her husband hurtled down an unmarked road of loving a child with complex disabilities and life-limiting epilepsy.

Muhammad Yahya at home.
October 11, 2017

We always try to find a way of doing things that allows him to join in. He’s got so much confidence as a result, so we try to encourage him to do his own thing and always be himself.