Latest news and campaign updates from the Disabled Children’s Partnership.
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NHS Long Term Plan
On 7 January 2019, the Government published its long term plan for the National Health Service.
We have put out a short statement reacting to what the plan means for disabled children and their families.
There are not enough services for disabled children and their families and across the country many of those that do exist are under threat from cuts. Children and families are missing out on vital help that enables them to do things other children take for granted like eat, talk, leave the house, have fun and attend school.
We want to make sure that the Government is fully aware of the need for additional funding for these vital services. Therefore, we are asking our supporters to help us make the case for more funding for disabled children by asking their MPs to write to the Treasury. Click here to create an email to your MP.
On 15 November, parents gathered at Nascot Lawn to mark its closure. This sad occasion marked the end of the parents’ brave campaign to save the centre.
Economic Affairs Committee – Inquiry on social care funding in England
2018 Budget – a missed opportunity
Today’s (29 October) Budget was a missed opportunity to address the crisis in health and social care services for disabled children.
Commenting on the Budget, Stephen Kingdom – Campaign Manager for the Disabled Children’s Partnership, said “The Budget included welcome additional funding for social care. But it was a missed opportunity to address the crisis in social care services for disabled children. Our research identified a £434 million funding gap for these services. It is essential that the Government uses next year’s spending review to close this gap and to create an early intervention and family resilience fund as set out in our Five Step Plan.”
You can read more about our Five Step Plan here
The Government has announced that this year’s Budget will be on 29 October. In advance of it, the Treasury invited the public to make ‘representations’ by 28 September. You can read what we submitted here.
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On 16 July, the Disabled Children’s Partnership published economic research showing a £1.5 billion funding gap for services needed by disabled children. This investment shortfall and its consequences was highlighted on the BBC Panorama programme ‘Fighting for My Child’.
We’re pleased that Worcestershire council have listened to parents and recommended that Ludlow Road respite centre in Kidderminster remain open into next year. However this still leaves an uncertain future for families.
Nascot Lawn latest: council decides not refer the matter to the Secretary of State
Hertfordshire County Council’s Health Scrutiny Committee met on 3 July. Among the items on its agenda was the decision by Herts Valleys Clinical Commissioning Group (HVCCG) to withdraw funding from Nascot Lawn, a centre that provides overnight short breaks for children with complex health needs. It was open to the council to refer HVCCG’s decision to the Secretary of State for Health and Social Care, but sadly they decided against doing so.
Stephen Kingdom, campaign manager for the Disabled Children’s Partnership says: “Members of the Disabled Children’s Partnership, alongside the families who have fought so hard to keep Nascot Lawn open, are utterly baffled by the county council’s decision not take more decisive action over the CCG’s decision to withdraw funding for the centre and refer the matter to the Secretary of State for a final decision – an option open to the council under local authority regulations.
“The CCG’s decision to stop funding Nascot Lawn needn’t have been the end of the matter if the council considered that this would not be in the interests of the local health service. It seems self-evident to us – and to parents – that closing Nascot Lawn is not in the interests of the health service in Hertfordshire, given the impact it will have on children with complex health needs and their families. The council have missed a real opportunity to stop the closure of a much valued facility that helps local families with some of the most severely disabled children get a short break from caring. It’s also a false economy because keeping Nascot Lawn open could have also saved the council and the state money in the long run. If families with disabled children don’t get the support they need they are more likely to reach crisis point –at far more cost to the council and state than the cost of keeping Nascot Lawn open.”
On Thursday 28 June, we published the results of our survey on the quality of health and social care services. We asked families whether they thought the quality of health and social care services in their local area had got better or worse over the last few years. We also asked whether they were aware of any specific plans to cut services in the future. Thank you to everyone who took part the survey. We got a really good response rate with over 1,500 surveys completed.
The picture painted by the survey is not a good one. Three-quarters of family members said health services in their area had got worse; nearly two-thirds said the same for social care services; and just under half of respondents were aware of specific plans to cut services. You can read the full report of the survey results here.
Department for Education Children in Need Review
The Department for Education is currently reviewing support and outcomes for children in need. The Disabled Children’s Partnership welcomes this review, and the inclusion of disabled children within it. However, we have two significant concerns about the scope of the review. First, it is only looking at educational outcomes: these are clearly important, but not they are not the only outcomes that matter to children and families. Second, under the Children Act 1989 all disabled children are ‘children in need’ and it is important that the review is not limited to those children who are currently receiving services.
The ‘call for evidence’ stage of the review ran until 1 July and we took the opportunity to set out our concerns to the Department. You can read what we said to them here.
Education Select Committee special educational needs and disability inquiry
The House of Commons Education Select Committee is holding an inquiry into special educational needs and disability. You can more about the inquiry here. As part of the inquiry, the Committee asked for written submissions. Here is what we have said to the Committee about health and social care services for disabled children.
On 12 June, the Children’s Commissioner published analysis by the Institute for Fiscal Studies on public spending on Children in England between 2000 and 2020.
More overnight short breaks services under threat
The Disabled Children’s Partnership has today (21 May) issued statements calling on Worcestershire County Council and North Yorkshire County Council to protect overnight short breaks services under threat of closure.
Herts Valley Clinical Commissioning Group (CCG) has voted on 10 May to close the Nascot Lawn centre for severely disabled children. This devastating news means that, despite parents’ victories in the High Court, this vital service will close. It is, however, open to Hertfordshire County Council to refer the matter to Jeremy Hunt, the Secretary of State for Health and Social Care, for him to decide.
Listen here to our campaign manager, Stephen Kingdom, talking to Bob FM about the CCG’s decision. The interview was recorded and first broadcast on 12 May.
Families fighting Surrey council’s plan to cut more than £20 million from services for disabled children have officially lodged a legal challenge against the decision.
Thank you to everyone who signed our short breaks petition. On 19 April, parents and members of the DCP delivered the petition to number 10 Downing Street. We await the Government’s response.
Despite parent opposition, Hampshire County Council formally recommended the closure of the centres in Aldershot and Winchester, which provide care to 35 disabled children with the most complex needs in the area.
Step two of our Five Step Plan calls on the government to ‘Review funding of short breaks provision for disabled children and families’. But what do we mean when we talk about short breaks?
We’re launching the next phase of the #SecretLifeofUs campaign with a five step plan to address the growing crisis in health and social care for disabled children. We want the Government to take steps to ensure health and social care services work for disabled children and their families.